ATC Abstracts

American Transplant Congress abstracts

  • Home
  • Meetings Archive
    • 2020 American Transplant Congress
    • 2019 American Transplant Congress
    • 2018 American Transplant Congress
    • 2017 American Transplant Congress
    • 2016 American Transplant Congress
    • 2015 American Transplant Congress
    • 2013 American Transplant Congress
  • Keyword Index
  • Resources
    • 2016 Resources
      • 2016 Welcome Letter
      • ATC 2016 Program Planning Committees
      • ASTS Council 2015-2016
      • AST Board of Directors 2015-2016
    • 2015 Resources
      • 2015 Welcome Letter
      • ATC 2015 Program Planning Committees
      • ASTS Council 2014-2015
      • AST Board of Directors 2014-2015
      • 2015 Conference Schedule
  • Advanced Search

In Their Own Words: Living Kidney Donors Who Develop Kidney Failure.

L. Ross,1 C. Halverson,2 J. Wang,1 M. Poulson,3 J. Karlin,4 M. Crowley-Matoka.5

1U Chicago, Chicago, IL
2Anthropology, U Chicago, Chicago, IL
3Georgetown U, Washington, DC
4Family Medicine, UCSF, San Francisco, CA
5Medical Humanities, Northwestern U, Chicago, IL.

Meeting: 2016 American Transplant Congress

Abstract number: A144

Keywords: Adverse effects, Ethics, Kidney transplantation, Psychosocial

Session Information

Date: Saturday, June 11, 2016

Session Name: Poster Session A: Kidney Donor Outcomes

Session Time: 5:30pm-7:30pm

 Presentation Time: 5:30pm-7:30pm

Location: Halls C&D

Related Abstracts
  • Outcomes of Live Kidney Donors Who Develop End Stage Renal Disease
  • End Stage Renal Disease (ESRD) Patients' Willingness to Accept Risks to Living Kidney Donors.

Background: Psychosocial data about living kidney donation have been collected for almost five decades. The results are almost uniformly positive, even in the early years when graft failure and recipient death were the norm. To date, however, no study has provided psychosocial follow-up of donors who develop a serious health problem like end stage renal disease (ESRD).

Objectives: The aims of this study were: 1) to explore the impact of donation and subsequent ESRD on family dynamics; and 2) to explore patients' experience with the healthcare system and finances.

Methods: Donors were invited to participate in a qualitative interview if they met one or both of the inclusion criteria: 1) developed ESRD within 10 years of donating; and/or 2) lacked health insurance at the time of donation. Parent donors were excluded. Of the 50 who met these criteria, 42 were contacted and 23 participated (55%). Three were subsequently excluded from analysis: two because they donated before insurance covered kidney transplantation and one nondirected donor because all the others had donated to first-degree relatives.

Results: Twenty qualitative interviews with living donors who developed ESRD were analyzed. Five findings are described: 1) donors describe the decision-making process as spontaneous and fast; 2) donors describe a lack of appreciation for the need for post-donation self-care; 3) donors do not regret donating despite the adverse outcome; 4) donors would advise future donors to have in place emotional and physical support post-donation; and 5) donors appreciate the opportunity to tell their story from living donor to living with ESRD which virtually all perceive as two separate unrelated events.

Discussion: Most donors are positive about donation and would do it again, even when they develop ESRD themselves. However, they do propose some important changes to the decision-making and informed consent processes. Although our data are reassuring, we should not be complacent about donors' understanding of the decision-making process or of the risks and consequences of living kidney donation. Improved communication between living donors and the healthcare community is a first step to ensure that living donors understand their long-term risks and receive appropriate life-long follow-up care.

CITATION INFORMATION: Ross L, Halverson C, Wang J, Poulson M, Karlin J, Crowley-Matoka M. In Their Own Words: Living Kidney Donors Who Develop Kidney Failure. Am J Transplant. 2016;16 (suppl 3).

  • Tweet
  • Email
  • Print

To cite this abstract in AMA style:

Ross L, Halverson C, Wang J, Poulson M, Karlin J, Crowley-Matoka M. In Their Own Words: Living Kidney Donors Who Develop Kidney Failure. [abstract]. Am J Transplant. 2016; 16 (suppl 3). https://atcmeetingabstracts.com/abstract/in-their-own-words-living-kidney-donors-who-develop-kidney-failure/. Accessed February 28, 2021.

« Back to 2016 American Transplant Congress

Most Viewed Abstracts

  • This Week
  • This Month
  • All Time
  • A Decade of Donor-Derived Disease: A Report of the OPTN Ad Hoc Disease Transmission Advisory Committee (DTAC).
  • Low GFR after Kidney Donation Is Not Chronic Kidney Disease
  • Subtherapeutic Low Tacrolimus Trough Levels (≤3.5 Ng /ml) Are A Risk Factor For Acute Rejection And Creatinine Doubling.
  • Is There a Difference Between DCD and DBD Kidney Transplantation with Similar KDPI?
  • Kidney Dialysis after Heart Transplantation: The Short and Long Term Outcomes
  • Low GFR after Kidney Donation Is Not Chronic Kidney Disease
  • Subtherapeutic Low Tacrolimus Trough Levels (≤3.5 Ng /ml) Are A Risk Factor For Acute Rejection And Creatinine Doubling.
  • Penis Transplantation: First U.S. Experience.
  • A Decade of Donor-Derived Disease: A Report of the OPTN Ad Hoc Disease Transmission Advisory Committee (DTAC).
  • Is There a Difference Between DCD and DBD Kidney Transplantation with Similar KDPI?
  • Penis Transplantation: First U.S. Experience.
  • Is There a Difference Between DCD and DBD Kidney Transplantation with Similar KDPI?
  • Low GFR after Kidney Donation Is Not Chronic Kidney Disease
  • Evidence of a Clinically Significant Drug-Drug Interaction between Cannabidiol and Tacrolimus: A Case Report
  • Kidney Dialysis after Heart Transplantation: The Short and Long Term Outcomes

Visit Our Partner Sites

American Transplant Congress (ATC)

Visit the official site for the American Transplant Congress »

American Journal of Transplantation

The official publication for the American Society of Transplantation (AST) and the American Society of Transplant Surgeons (ASTS) »

American Society of Transplantation (AST)

An organization of more than 3000 professionals dedicated to advancing the field of transplantation. »

American Society of Transplant Surgeons (ASTS)

The society represents approximately 1,800 professionals dedicated to excellence in transplantation surgery. »

Copyright © 2013-2021 by American Society of Transplantation and the American Society of Transplant Surgeons. All rights reserved.

Privacy Policy

loading Cancel
Post was not sent - check your email addresses!
Email check failed, please try again
Sorry, your blog cannot share posts by email.
This site uses cookies: Find out more.