ATC Abstracts

American Transplant Congress abstracts

  • Home
  • Meetings Archive
    • 2022 American Transplant Congress
    • 2021 American Transplant Congress
    • 2020 American Transplant Congress
    • 2019 American Transplant Congress
    • 2018 American Transplant Congress
    • 2017 American Transplant Congress
    • 2016 American Transplant Congress
    • 2015 American Transplant Congress
    • 2013 American Transplant Congress
  • Keyword Index
  • Resources
    • 2021 Resources
    • 2016 Resources
      • 2016 Welcome Letter
      • ATC 2016 Program Planning Committees
      • ASTS Council 2015-2016
      • AST Board of Directors 2015-2016
    • 2015 Resources
      • 2015 Welcome Letter
      • ATC 2015 Program Planning Committees
      • ASTS Council 2014-2015
      • AST Board of Directors 2014-2015
      • 2015 Conference Schedule
  • Search

True Living Donation Experiences: A Thematic Analysis of Storytelling from Kidney Living Donors

E. Ho1, E. H. Wood2, R. Pines3, L. A. Davis4, S. M. Advani5, A. D. Waterman2

1Terasaki Institute, Los Angeles, CA, 2UCLA David Geffen School of Medicine, Los Angeles, CA, 3Cottage Hospital, Santa Barbara, CA, 4DeSales University, Center Valley, PA, 5National Human Genome Research Institute (NIH), Bethesda, MD

Meeting: 2021 American Transplant Congress

Abstract number: 874

Keywords: Kidney transplantation, Patient education, Psychosocial

Topic: Clinical Science » Kidney » Kidney Psychosocial

Session Information

Session Name: Kidney Psychosocial

Session Type: Poster Abstract

Session Date & Time: None. Available on demand.

Location: Virtual

*Purpose: Personal experiences of living donors (LDs) or recipients (Rs) can motivate more individuals to pursue living donor kidney transplant. After building a library of 160 video stories of patients and LDs, we conducted thematic content analysis to identify common themes and the emotional changes experienced along the LD journey.

*Methods: The 160 storytellers (76% LDs; 24% Rs) of diverse race/ethnicities (55% White; 6% Black; 7% other; and 8% Hispanic) recorded stories using open-ended prompts. Two coders watched each video and coded dimensions of the content participants shared including their emotions, barriers, motivations and personal experiences. Descriptive statistics were run to explore common themes and chi-squared test were run to compare differences based on participant’s emotional status.

*Results: Rs mostly reported they pursued a LD transplant due to its improved outcomes over deceased donation (84%), support from family (64%), and dissatisfaction feeling sick on dialysis (40%). A majority felt gratitude for the transplant (61%). LDs reported motivations to donate to improve someone’s quality of life (42%), family support for donation (47%), concern for the donor’s future health (38%), and gratitude and fulfillment received from donating (47%). As Rs & LDs progressed along the transplant journey their emotions shifted (Fig 1,2). Compared to before surgery, afterwards Rs were more likely to report feelings of happiness (21% vs 29%), relief (8% vs 21%), and hope (3% during kidney failure vs. 8% after surgery). Compared to before donation, LDs were more likely to report happiness (22% vs. 55%), relief (10% vs. 20%), and pride (3% vs 10%) afterwards. ­

*Conclusions: LD stories captured through a digital library address the emotional and practical challenges they faced as well as the positive outcomes and gratitude they feel now. This realistic and reassuring library can be used to supplement traditional education about LD within medical encounters and through social media campaigns to generate interest in LD.

 border=

 border=

  • Tweet
  • Email
  • Print

To cite this abstract in AMA style:

Ho E, Wood EH, Pines R, Davis LA, Advani SM, Waterman AD. True Living Donation Experiences: A Thematic Analysis of Storytelling from Kidney Living Donors [abstract]. Am J Transplant. 2021; 21 (suppl 3). https://atcmeetingabstracts.com/abstract/true-living-donation-experiences-a-thematic-analysis-of-storytelling-from-kidney-living-donors/. Accessed May 14, 2025.

« Back to 2021 American Transplant Congress

Visit Our Partner Sites

American Transplant Congress (ATC)

Visit the official site for the American Transplant Congress »

American Journal of Transplantation

The official publication for the American Society of Transplantation (AST) and the American Society of Transplant Surgeons (ASTS) »

American Society of Transplantation (AST)

An organization of more than 3000 professionals dedicated to advancing the field of transplantation. »

American Society of Transplant Surgeons (ASTS)

The society represents approximately 1,800 professionals dedicated to excellence in transplantation surgery. »

Copyright © 2013-2025 by American Society of Transplantation and the American Society of Transplant Surgeons. All rights reserved.

Privacy Policy | Terms of Use | Cookie Preferences