Articles tagged "Quality of life"

2022 American Transplant Congress
A Comparison of Self-Reported Physical Function to In-Person Frailty Assessments for the Prediction of Rehospitalizations After Kidney Transplantation
E. Lorenz¹, C. Kennedy¹, C. Schinstock¹, A. Kukla¹, D. Eton¹, H. Wadei², G. Mour³, P. Dean⁴, A. Rule¹, N. LeBrasseur¹, A. Cheville¹
¹Mayo Clinic, Rochester, MN, ²Mayo Clinic, Jacksonville, FL, ³Mayo Clinic, Scottsdale, AZ, ⁴Mayo Clinic Rochester, Rochester, MN
*Purpose: Rehospitalizations are common after kidney transplantation (KT) and associated with increased cost, allograft failure, and death. Physical frailty as defined by Fried criteria has…
2022 American Transplant Congress
Quality of Life of Brazilian Kidney Transplant Patients: A Sub-Project of ADHERE Brazil Multicenter Study
A. R. Almeida¹, F. R. Grincenkov², F. A. Colugnati¹, J. O. Medina³, S. De Geest⁴, H. Sanders-Pinheiro¹, S. ADHERE BRAZIL¹
¹Nephrology, Federal University of Juiz de Fora, Juiz de Fora, Brazil, ²Psychology, Federal University of Juiz de Fora, Juiz de Fora, Brazil, ³Nephrology, Hospital do Rim. Federal University of São Paulo, São Paulo, Brazil, ⁴Department of Public Health, Institute of Nursing Science, Basel, Switzerland
*Purpose: While the quality of life (QoL) is known to improve after kidney transplant (KT), epidemiologic data are limited in Brazil. We aimed to describe…
2022 American Transplant Congress
Development of a Patient-Reported Outcome Measure of Neurological Side Effects from Immunosuppression in Kidney Transplant Recipients
C. Hurt¹, G. J. Greene¹, J. Friedewald², D. P. Ladner², A. Waterman³, D. Cella¹, D. Peipert¹
¹Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, ²Department of Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL, ³Department of Surgery and J.C. Walter Jr. Transplant Center, Houston Methodist Hospital, Houston, TX
*Purpose: Though kidney transplant is the optimal treatment for most individuals with end stage kidney disease, recipients experience significant side effects associated with their required…
2022 American Transplant Congress
Palliative Care for the Patients with Failing Kidney Allograft: Kraft Survey
N. Murakami¹, S. Gelfand¹, A. J. Reich¹, R. Leiter², J. Lakin², J. T. Adler³, E. Lu⁴, S. Ong⁵, B. P. Concepcion⁶, N. Singh⁷, H. Murad⁸, P. Anand⁹, S. Ramer¹⁰, D. Dadhania¹¹, K. Lentine¹², T. Alhamad¹³
¹Brigham and Women's Hospital, Boston, MA, ²Dana-Farber Cancer Institute, Boston, MA, ³University of Texas Austin, Austin, TX, ⁴Icahn School of Mount Sinai, New York, NY, ⁵Universiy of Alabama at Birmingham, Birmingham, AL, ⁶Vanderbilt University Medical Center, Nashville, TN, ⁷John C. McDonald Regional Transplant Center, Shreveport, LA, ⁸Washington University in St Louis, Chesterfield, MO, ⁹Medical University of South Carolina, Lancaster, SC, ¹⁰Weil Cornell Medicine, New York, NY, ¹¹Weill Cornell Medicine - NYPH, New York, NY, ¹²Saint Louis University, St. Louis, MO, ¹³Washington University School of Medicine at St. Louis, Saint Louis, MO
*Purpose: Care of patients with failing kidney allograft can be challenging with discordant expectations between clinicians and patients. These patients often suffer from multiple morbidities,…
2022 American Transplant Congress
PFIC- Outcome and Time to Transplant After Biliary Diversion According to Genetic Subtypes
M. Schulze¹, A. Sahloul², E. Lainka³
¹Organ Transplant Centre of Excellence, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia, ²Department of General, Visceral and Transplant Surgery, University Hospital Essen, Essen, Germany, ³Department of Pediatric Gastroenterology, University Hospital Essen, Essen, Germany
*Purpose: Progressive familial intrahepatic Cholestasis (PFIC) is a heterogeneous autosomal recessive disease characterized by progressive cholestasis, pruritus leading to liver injury. Surgical therapy aims in…
2022 American Transplant Congress
Incidence of Biliary Complications at the Beginning of the Academic Year in an Academic Transplant Program
M. E. Tobon Lascano, C. J. Simon, M. E. Akoad, J. Kim, M. Simpson, Y. Cheah
Transplant, Lahey Clinic, Burlington, MA
*Purpose: Surgery learning is based on a master-apprentice model, a learning curve is essential to measure the acquisition and improvement of surgical skills without compromising…
2022 American Transplant Congress
Effects of Pre-Lung Transplantation Pulmonary Rehabilitation on Functional Capacity and Quality of Life
R. M. AlGhofaily
Physical Therapy, Organ Transplant Center, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia
*Purpose: Pulmonary rehabilitation (PR) prior lung transplantation (LT) has been effective in reducing post transplantation complications. However, few studies have examined the effect of pre-lung…
2022 American Transplant Congress
In Vitro Fertilization Use Among Female Kidney Transplant Recipients
L. A. Coscia¹, J. M. Konel², M. Bowring³, S. Constantinescu⁴, M. J. Moritz⁵
¹Transplant Pregnancy Registry International, Philadelphia, PA, ²Wayne State University School of Medicine, Detroit, MI, ³Johns Hopkins University School of Medicine, Baltimore, MD, ⁴Medicine, Lewis Katz School of Medicine at Temple University, Philadelphia, PA, ⁵Surgery, Lehigh Valley Health Network, Allentown, PA
*Purpose: Infertility is common among female kidney transplant recipients (KTRs). In vitro fertilization (IVF) is a potential option. The purpose of this study was to…
2022 American Transplant Congress
Equivalence of Pediatric Paper and Electronic-Based Patient-Reported Outcome Measures: Findings from a Systematic Review
S. Kortbeek¹, A. Pawaria², V. L. Ng¹
¹Division of Gastroenterology, Hepatology and Nutrition, Department of Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada, ²Pediatric Hepatology, Gastroenterology and Liver Transplant, Global Hospitals, Mumbai, India
*Purpose: Integration of patient reported outcome measures (PROMs) in routine clinical care reduces utilisation of health care services and improves patient outcomes. Electronic versions of…
2022 American Transplant Congress
Development and Validation of a Kidney Transplant-Specific Measure of Treatment Burden
E. Lorenz¹, T. Petterson¹, I. Zaniletti¹, K. Lackore¹, B. Johnson¹, M. Mai², S. Nair³, A. Bentall¹, K. Yost¹, D. Eton¹
¹Mayo Clinic, Rochester, MN, ²Mayo Clinic, Jacksonville, FL, ³Mayo Clinic, Scottsdale, AZ
*Purpose: Treatment burden refers to the work involved in managing one’s health and its impact on well-being. Treatment burden has been associated with nonadherence and…

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