Articles tagged "Patient education"

2021 American Transplant Congress
Creating a Culturally Sensitive Report Card for African American Kidney Transplant Candidates: Preliminary Results from Pilot Interviews and Focus Groups
W. T. McKinney¹, M. Bruin², B. Kasiske³, A. Matas⁴, A. K. Israni³
¹Hennepin Healthcare Research Institute, Minneapolis, MN, ²College of Design, University of Minnesota, Minneapolis, MN, ³Nephrology, Hennepin Healthcare, Minneapolis, MN, ⁴Department of Surgery, University of Minnesota, Minneapolis, MN
*Purpose: Racial disparities in kidney transplantation continue to negatively impact African American (AA) patients despite changes to deceased donor allocation practices. AA patients are overrepresented…
2021 American Transplant Congress
Challenges and Stressors of COVID-19 Kidney and Transplant Patients: A Mixed Methods Study
Y. A. Iraheta¹, A. L. Murillo², E. H. Wood¹, S. M. Advani³, R. Pines⁴, A. D. Waterman¹
¹UCLA David Geffen School of Medicine, Los Angeles, CA, ²Terasaki Institute, Los Angeles, CA, ³National Human Genome Research Institute (NIH), Bethesda, MD, ⁴Santa Barbara Cottage Hospital, Santa Barbara, CA
*Purpose: To assess the unique needs of at-risk kidney and transplant patients and their caregivers during COVID-19, we established a telephone Listening Center enabling them…
2021 American Transplant Congress
Seeing is Believing: Efficacy of a Video-based Intervention in Improving Awareness of Skin Cancer Risk for Solid Organ Transplant Recipients
E. Shah¹, S. Michalak¹, R. Haughton¹, B. Fernandez¹, I. Ahronowitz²
¹Keck School of Medicine, Los Angeles, CA, ²Dermatology, Keck School of Medicine, Los Angeles, CA
*Purpose: Our research focuses on the efficacy of using a novel video-based intervention to educate solid organ transplant recipients on their increased risk of skin…
2021 American Transplant Congress
Early Transplant Education Increases CKD 3-5 Patients’ Knowledge and Informed Decision-Making About Chronic Kidney Disease and Living Donor Kidney Transplant
A. D. Waterman¹, S. H. Kawakita², B. Dub³, Y. A. Iraheta¹, A. L. Murillo², T. Menser⁴, B. Mittman³
¹UCLA David Geffen School of Medicine, Los Angeles, CA, ²Terasaki Institute, Los Angeles, CA, ³Research and Evaluation, Kaiser Permanente, Pasadena, CA, ⁴The Houston Methodist Research Institute, Houston, CA
*Purpose: Early education about chronic kidney disease (CKD) and living donor kidney transplant (LDKT) outside of transplant centers is inconsistent, with patients in CKD 3…
2021 American Transplant Congress
Impact of the Transplant Clinical Pharmacist in an Outpatient Transplant Clinic
O. Roe¹, S. Gattis¹, R. Parsons², D. Lo², S. Todd¹
¹Emory University Hospital, Atlanta, GA, ²Emory Transplant Center, Atlanta, GA
*Purpose: Pharmacist involvement in the outpatient transplant clinic setting has been correlated with improved patient outcomes in single organ cohort studies. Direct clinical pharmacist involvement…
2021 American Transplant Congress
Development of a Question Prompt Sheet for Upper Extremity Vascularized Composite Allotransplantation
J. Gacki-Smith¹, B. Kuramitsu¹, A. Ferzola², K. Vanterpool², C. Kunkle³, M. Hewitt³, A. Schultheis³, T. Riggleman³, J. Taylor³, C. Cooney², M. Levan², S. Tintle³, G. Brandacher², E. Gordon¹
¹Northwestern University, Chicago, IL, ²Johns Hopkins University, Baltimore, MD, ³Walter Reed National Military Medical Center, Bethesda, MD
*Purpose: Upper extremity (UE) vascularized composite allotransplantation (VCA) is an innovative option for people with UE amputations. Individuals with limb loss commonly receive little information…
2021 American Transplant Congress
Patient and Physician Perspectives on Kdpi>85 Consent and Kidney Acceptance Decision Making
K. J. Schantz¹, E. Gordon¹, U. Lee¹, M. Rocha¹, J. Friedewald¹, D. Ladner¹, Y. Becker², D. Kaufman³, R. Formica⁴, P. Reese⁵, M. Barah¹, M. Walker¹, D. Viveros⁶, O. Mehrotra⁶, S. Mehrotra¹
¹Northwestern University, Evanston, IL, ²University of Chicago, Chicago, IL, ³University of Wisconsin, Madison, WI, ⁴Yale University, New Haven, CT, ⁵University of Pennsylvania, Philadelphia, PA, ⁶University of Illinois Chicago, Chicago, IL
*Purpose: This study explores patient and physician perspectives on patients' understandings of kidney quality and patients' decision making with regards to consenting for and accepting…
2021 American Transplant Congress
Experiential Expertise: What Can Patients and Donors Teach Us About Living Donation?
L. A. Davis¹, E. H. Wood², E. Ho³, R. Pines⁴, S. M. Advani⁵, A. D. Waterman²
¹DeSales University, Center Valley, PA, ²UCLA David Geffen School of Medicine, Los Angeles, CA, ³Terasaki Institute, Los Angeles, CA, ⁴Santa Barbara Cottage Hospital, Santa Barbara, CA, ⁵National Human Genome Research Institute, NIH, Bethesda, MD
*Purpose: While educational materials and discussions with medical professionals are factually sound, insight from actual living donors (LDs) and recipients (Rs) may offer unique, experiential…
2021 American Transplant Congress
True Living Donation Experiences: A Thematic Analysis of Storytelling from Kidney Living Donors
E. Ho¹, E. H. Wood², R. Pines³, L. A. Davis⁴, S. M. Advani⁵, A. D. Waterman²
¹Terasaki Institute, Los Angeles, CA, ²UCLA David Geffen School of Medicine, Los Angeles, CA, ³Cottage Hospital, Santa Barbara, CA, ⁴DeSales University, Center Valley, PA, ⁵National Human Genome Research Institute (NIH), Bethesda, MD
*Purpose: Personal experiences of living donors (LDs) or recipients (Rs) can motivate more individuals to pursue living donor kidney transplant. After building a library of…
2021 American Transplant Congress
Identifying the Needs of Kidney Transplant Recipients That Can be Addressed by a Web-based Self-management Program
D. Massierer¹, R. Sapir-Pichhadze², V. Bouchard³, K. Dasgupta², N. Fernandez⁴, D. da Costa², S. Ahmed¹, M. Fortin⁵, R. Langevin⁶, N. Mayo¹, T. Janaudis-Ferreira¹
¹Faculty of Medicine- School of Physical and Occupational Therapy, McGill University, Montreal, QC, Canada, ²Centre for Outcomes Research and Evaluation (CORE), Research Institute of the McGill University Health Centre (RI-MUHC), Montreal, QC, Canada, ³CIUSSS du Saguenay-Lac-Saint-Jean, Chicoutimi, QC, Canada, ⁴Department of Family Medicine/Emergency Medicine, Université de Montreal, Montreal, QC, Canada, ⁵Department of Medicine, Université de Montreal, Montreal, QC, Canada, ⁶Canadian Donation and Transplantation Research Program (CDTRP), Edmonton, AB, Canada
*Purpose: Kidney transplantation improves the quality of life (QoL) of patients with end-stage renal disease, however, post-transplant recovery of physical health and other aspects of…