The Scientific Registry of Transplant Recipients (SRTR) provides federally mandated program-specific transplant data to the public. SRTR has developed new website materials to provide more comprehensive data, including a potential 5-tier graphical icon display of waitlist mortality. Currently, there is little understanding of patient perceptions of this information. This study conducted kidney and liver focus groups for candidates and family members at one local center and national recipients from every Organ Procurement and Transplantation Network region. Each 90-minute discussion included open-ended feedback on website mockups depicting waitlist mortality and alternate metrics. Mockups used hypothetical programs with realistic data. The 13 focus groups included 67 total participants. Perceptions of waitlist mortality information were mixed. Positive comments emphasized the relevance for candidates with long waits, and negative comments discussed challenges to synthesizing all information. A range of positive and negative feedback suggests waitlist mortality metrics will be relevant to different patients and at different points in time.

CITATION INFORMATION: Schaffhausen C., Bruin M., Chu S., Matas A., Lake J., Kim W., Biggins S., Snyder J., Kasiske B., Israni A. Evaluating Displays of Program Waitlist Mortality on Public Search Results Am J Transplant. 2017;17 (suppl 3).

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