Capturing Stories about Living Kidney Donation Using Storytelling Capture Technology: A Feasibility Assessment
1Division of Nephrology, UCLA School of Medicine, Los Angeles, CA, 2Terasaki Research Institute, Los Angeles, CA, 3Division of Bio-behavioral Medicine, Medical University of South Carolina, Charleston, SC
Meeting: 2019 American Transplant Congress
Abstract number: C124
Session Information
Session Name: Poster Session C: Kidney Psychosocial
Session Type: Poster Session
Date: Monday, June 3, 2019
Session Time: 6:00pm-7:00pm
Presentation Time: 6:00pm-7:00pm
Location: Hall C & D
*Purpose: Humans are storytelling beings. Hearing real-life stories about living donor kidney transplant (LDKT) can motivate and educate others about living donation including its risks and benefits. However, the cost and complexity of filming LDKT stories can be prohibitive. In 2017-2018, we designed the Living Donation Storytelling Project using storytelling capture technology that films stories from an individual’s phone or computer. Storytellers chose a series of prompts unique to their experience with LDKT, which were filmed and stitched together into a complete story to be shared.
*Methods: We asked 54 storytellers (27 living donors; 20 LDKT recipients; 4 family/friends; 3 others) to share their experience with living donation. They were prompted to share their fears, questions, motivations, and the risks and benefits they experienced.
*Results: Storytellers were predominately female (74%), varied by race/ethnicity [White (75%), African-American (6%), Hispanic (8%), Other (13%)] with most having received at least a college education (89%). Of the donors, most donated to someone they knew (76%) versus to a stranger (21%) or through a transplant chain (3%). The average length of the videos was 11 minutes. Storytellers were motivated to share their stories in order to educate the public (93%), help others learn more (80%), inspire others to become donors (76%), share the benefits of living donation (72%), and share their personal experiences (70%). Most rated filming the storytelling process to be emotionally easy (69%) and technologically easy (56%). Storytellers shared many of the benefits and risks of LDKT (Table 1).
*Conclusions: Storytelling capture technology is a novel way to educate prospective living kidney donors, patients pursuing LDKT and the general public about LDKT. Sensitivity to ensuring the diversity of storytellers and helping individuals navigate technological challenges is critical to maximize the value of this educational resource and the equity of LDKT.
To cite this abstract in AMA style:
Waterman AD, Anderson CS, Ranasinghe ON, Cui Y, Brecher S, Balliet W. Capturing Stories about Living Kidney Donation Using Storytelling Capture Technology: A Feasibility Assessment [abstract]. Am J Transplant. 2019; 19 (suppl 3). https://atcmeetingabstracts.com/abstract/capturing-stories-about-living-kidney-donation-using-storytelling-capture-technology-a-feasibility-assessment/. Accessed May 13, 2025.« Back to 2019 American Transplant Congress