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Barriers and Experiences When Patients Decide on a Kidney Transplant Center.

C. Schaffhausen,1,4 M. Bruin,3 J. Synder,2,4 B. Kasiske,1,4 A. Israni.1,2,4

1Department of Medicine, Hennepin County Medical Center, University of Minnesota, Minneapolis, MN
2Department of Epidemiology and Community Health, University of Minnesota, Minneapolis, MN
3College of Design, University of Minnesota, Minneapolis, MN
4Minneapolis Medical Research Foundation, Minneapolis, MN

Meeting: 2017 American Transplant Congress

Abstract number: D308

Keywords: Patient education

Session Information

Date: Tuesday, May 2, 2017

Session Name: Poster Session D: Non-Organ Specific: Economics, Public Policy, Allocation, Ethics

Session Time: 6:00pm-7:00pm

 Presentation Time: 6:00pm-7:00pm

Location: Hall D1

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Choosing a transplant center is one decision in a long pre-transplant process facing many patients. Qualitative studies have previously been used to better understand the experiences, attitudes, values, and behaviors of patients for a number of critical pre-transplant decision points. However, little is known about the patient experience of selecting a desired transplant center based on referral and other available information or about what information gaps may exist when choosing a center. This qualitative study included 20 semi-structured interviews with kidney transplant patients at 2 centers in Minnesota: 50% male; 65% white, 35% black; median age 50 (min 21, max 69). Several themes emerged that are related to the experience of choosing a transplant center. Patients are often unfamiliar with different available options, even if multiple centers are local. Patients are often referred to a specific center and assume this is the only option available. Those patients who are provided with multiple options have little specific information about each option in order to make a decision. Patients have a limited understanding of how one center may be different from another, and some are interested in seeing comparative data. Challenges exist in disseminating new information to patients because of existing barriers to decision making such as a limited general knowledge about transplant and uncertainty using the internet as a resource. The information will be used to inform new patient resources to identify and compare transplant centers.

CITATION INFORMATION: Schaffhausen C, Bruin M, Synder J, Kasiske B, Israni A. Barriers and Experiences When Patients Decide on a Kidney Transplant Center. Am J Transplant. 2017;17 (suppl 3).

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To cite this abstract in AMA style:

Schaffhausen C, Bruin M, Synder J, Kasiske B, Israni A. Barriers and Experiences When Patients Decide on a Kidney Transplant Center. [abstract]. Am J Transplant. 2017; 17 (suppl 3). https://atcmeetingabstracts.com/abstract/barriers-and-experiences-when-patients-decide-on-a-kidney-transplant-center/. Accessed January 21, 2021.

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