Addressing a Need in Transplant Clinical Care: Creation of the Organ Transplant Caregiver Toolkit
1University of Virginia School of Medicine, Charlottesville, VA, 2Memorial Hermann Transplant Center, Houston, TX, 3Memorial Transplant Institute, Miami, FL, 4Medical University of South Carolina, Charleston, SC, 5Mayo Clinic, Pheonix, AZ, 6Banner Transplant Institute, Pheonix, AZ, 7Caregiver, Minburn, IA, 8National Kidney Foundation, New York, NY, 9Stanford Children's Hospital, Palo Alto, CA, 10University of Michigan, Ann Arbor, MI, 11Henry Ford Transplant Institute, Detroit, MI
Meeting: 2021 American Transplant Congress
Abstract number: 385
Keywords: Psychosocial
Topic: Clinical Science » Ethics » Psychosocial and Treatment Adherence
Session Information
Session Name: A Penny for Your Thoughts: the Economics and Psychosocial Aspects of Transplant
Session Type: Rapid Fire Oral Abstract
Date: Tuesday, June 8, 2021
Session Time: 6:00pm-7:00pm
Presentation Time: 6:15pm-6:20pm
Location: Virtual
*Purpose: Lay or informal caregivers are a critical component of pre- and post-operative care in adult organ transplantation and living donation. Caregiving in organ transplantation has its own unique challenges and burdens. Despite the numerous demands placed on caregivers, there is currently no comprehensive educational resource for transplant caregivers. The Organ Transplant Caregiver Initiative held a consensus conference in October 2019, during which development of an educational toolkit for caregivers of adult organ transplant candidates/recipients/donors was discussed. A Caregiver Education Subcommittee was formed and tasked with creation of a toolkit. The goal of the toolkit is to provide essential, accessible, and timely education and resources to transplant caregivers.
*Methods: The 11 member Caregiver Education Subcommittee met virtually throughout 2020 to develop content for the transplant caregiver toolkit. The toolkit is comprised of two primary sections as defined during the consensus conference, General content and Organ specific content, and multiple subsections (see Table 1). The Subcommittee assigned members to create a draft of each topic section. Drafts were shared and reviewed by subcommittee members during two virtual review meetings.
*Results: A final draft has been reviewed by 14 external psychosocial reviewers and 7 organ transplant caregivers to obtain additional feedback. This process is currently under way and a final version of the toolkit will be sent to the AST Board for review in early 2021.
*Conclusions: An accessible educational resource is needed for organ transplant caregivers and development of such a resource is underway.
To cite this abstract in AMA style:
Bruschwein H, Chen G, Ortega A, Balliet W, Coco T, Thomas C, Hansen B, Richardson D, Canavan K, Burch C, Yaldo A, Jesse M. Addressing a Need in Transplant Clinical Care: Creation of the Organ Transplant Caregiver Toolkit [abstract]. Am J Transplant. 2021; 21 (suppl 3). https://atcmeetingabstracts.com/abstract/addressing-a-need-in-transplant-clinical-care-creation-of-the-organ-transplant-caregiver-toolkit/. Accessed May 12, 2025.« Back to 2021 American Transplant Congress